← Return to I am being steered towards injections despite progressive symptoms…

Discussion
Comment receiving replies
Profile picture for bilt4pain @bilt4pain

@judyhendricks1959
I’m still not sure how I endured it. Apparently the body has a high tolerance for physical trauma. And pain meds helped. I’ll get to every question you have. I’ve had 3 surgeons, Dr. Ciacci in Annapolis, Md, then Dr. Neece, in Frisco TX, and the last 2 major rebuilds were from Dr Callewart, specialist in spinal deformities, in Dallas TX. How did it start: In my early 20’s, I was recruited to a Federal (3 letter) agency. My function was very diverse. I had a parachute accident and compression fractures of several vertebrae. 20+ years later I developed degenerative disc disease after it was reinjured in 2004. Post op pain can be a double edged sword. Sometimes on the OR table the body has to be positioned in an unnatural way. For instance, one surgery required my arms be hyper extended above my head and pushed backwards. My armpits were in more pain than my back, and lasted a month. The pain in the hospital has never been a problem. Always got a PCA, Patient Controlled Analgesic, also known as a morphine button. It will dispense a preset amount of drug every 15 minutes if you push the button. It’s the pain after you get home, along with the loss of range of motion that’s the real issue. The intense trauma the body experiences lasts a few months, but easily handled by 10/325 Hydrocodone. Depending on what’s getting done will determine a loss of flexibility vs a permanent loss of a specific function, like bending or twisting at the waist. When the Lumbar Spine is fused, that’s a permanent loss. And it took me a while to adjust to my new normal. And I’ve had several new normals. In the beginning it was very hard hard physically and emotionally. You have to relearn how to live with all the assistive devices. To put on socks, shoes, wipe my behind, and in my case walk with a cane. I think it’s the most difficult part of the recovery. Being forced to sleep on your back, and in the middle of the night you subconsciously want to sleep on your side, but when your body attempts it, it locks up and wakes you up from the jolt inside you. I wish there was a voice function for this chat. I have so much to say, but no patience to type for a long time. I work off my phone. Keep asking, I’ll always answer. Happy New Year!

Jump to this post


Replies to "@judyhendricks1959 I’m still not sure how I endured it. Apparently the body has a high tolerance..."

Happy New Year to you too! Wow, bad initial injury!! Holy crap. Sounds like
you've seen and lived through more than 90% of people ever could tolerate,
so first off - kudos to your never say never spirit. I too have endured a
lot in life (not surgical but emotionally) and I consider myself pretty
tough. If, someone told me we HAD to move our house 2 feet to the left, I'd
find a flippin way to get it done. I'm a do-er not a quitter. This just
scares the crap out of me. It feels like I just might not have what it
takes to pass with flying colors or more realistically pass well with no
adverse events.
I guess fortunately for me I've already become a back sleeper due to
another issue that doesn't allow me side sleeping for past 2 years - ✅ ha!
I've also, at the advice of patient experiences I was told I should watch,
have seen what I'll need postop for loss of mobility, hygiene etc. yah,
it's gonna stink and seems everythings gonna take longer to do but it is
what it is, right.
Is your walker a permanent need for you now? The extensive degree of your
repairs require it?
Should I be asking my surgeon if he'll have a co-surgeon doing it with him?
Had your surgeon done these before? I'm sched. Feb 9th at Mass General in
Boston, but am in the process of 2nd opinion in AZ at Barrow Neurological
Institute. I've gotten the written report from them but they offered me to
come there for more info. So, we are planning on a face to face consult
possibly with some other scans in AZ now. So sadly, I have to call MGH to
let them know I'm at least postponing Feb 9th. Hope that doesn't blow up in
my face. Did you get 2nd opinion?? How & when did you know you had no
choice left? Pain? Nerve compression, loss of function? How did you choose
ur surgeon??
What is ur current level of functioning?
Thank you for everything your ok with sharing! It's like a million
questions, but I hope it helps you in some cathartic way.