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Reaching the goal line……

Polymyalgia Rheumatica (PMR) | Last Active: Jan 3 12:31am | Replies (23)

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Profile picture for p00lman49 @p00lman49

November 2025 was my three (3) year anniversary of being diagnosed with PMR. Initially I was put on 40 MG of Prednisone for the first four weeks and then reducing by 2 MG per month, then in July 2025 went to 20 MG and reducing by 2 MG per two weeks. Had a spike in issues in September, went back to 20 MG for a month but since then I have been reducing steadily and now am down to 3 mg daily and have never felt better in past three years. I have recently been diagnosed with Chronic Lymphatic Leukemia and will meet with the Oncologist next week to find out his opinion and course of action. My blood labs show marked improvement in several areas and I hope and believe January will be the last month I will take Prednisone. I had two back surgeries last year, the first lower back fusion went oK but the surgeon did not want me to do any PT for 3 onths following the operation. That was a mistake on his part and a mistake on my part for following his direction. In July I had a Cervical disk fusion needed from a bad bicyle accident in 2012. The fusin went very well but I developed a hematoma in my trachea and had to have emergency surgery, 5 day ICU and 20 day in hospital rehab to be able to swallow food.Since then a lot of rehab to gain strength to walk but my lower back is still a pain issue. Water Therapy has really helped to address the strength and pain (along with a nerve block shot). The CLL is the complicating factor now. But Prednisone reductions are going smoothly and to that I am loving this New Year.

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Replies to "November 2025 was my three (3) year anniversary of being diagnosed with PMR. Initially I was..."

@p00lman49
OMG….what a journey. Several things struck me, as happened to me …
The endless roller coaster, Bike accident, water therapy, prednisone taper, etc.
And lastly, I, too, love this NEW YEAR.
Great work!
Get after it everyone!
As a team we CAN DO!