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jimmyjohnson74 avatar

Parry Romberg Syndrome

Autoimmune Diseases | Last Active: 4 days ago | Replies (9)

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Profile picture for John, Volunteer Mentor @johnbishop

Hello @jimmyjohnson74, Welcome to Connect. I see that you have already found another discussion where @jonfortier posted a picture with symptoms similar to yours. I hope the member returns and responds to your question but I'm not sure he is still following Connect. He was last active on Connect last January.

Here is some information on Parry-Romberg Syndrome from NIH, including the treatment and management of the condition - https://www.ncbi.nlm.nih.gov/books/NBK574506/.

Have you seen a doctor yet?

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Replies to "Hello @jimmyjohnson74, Welcome to Connect. I see that you have already found another discussion where @jonfortier..."

@johnbishop Jan 6th

@johnbishop, I answered him on the other thread. Unfortunately nobody has been able to figure it out. Luckily it hasn't progressed any.

@johnbishop how do I upload a photo in my comments?