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← Return to Reaching the goal line……
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Polymyalgia Rheumatica (PMR) | Last Active: Jan 3 12:31am | Replies (23)
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We share a PMR anniversary tweety bird ! Although I went on to large vessel GCA too 12mths ago.
I’m off all treatments & all medication now as of recently.
Feeling fine and pathology excellent.
It’s possible.
Replies to "We share a PMR anniversary tweety bird ! Although I went on to large vessel GCA..."
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@maye33
And a Very Happy New Year to you, my “anniversary mate”.
May the good vibes/work stay with you in 2026.
PS: interesting note, my Rehumy had me taper dose of Kevzara to every 3 wks to get my WBC and neutrophils back in line. It worked, now……
He wants me to GO BACK TO every2 wks Kevzara.
All thru patient portal.
Never asked how “am I doing, etc..” and come into office for nxt blood work. 🤔
Maybe a “bot” is doing his work, because no one has read my chart.
Sorry this is long……my reply
“No, I don’t come to your lab.
My car was hit there.and it’s a 40 min ride each way.
I have done the last several labs at Sonora quest nr where I live …since April 17, 2025
Pls ask Dr to chg that.
DR, why do I NEED to increase the Kevzara?
I have been on Kevzara 3 weeks apart since 10/22 with no side effects, and my blood work was good on 12/17.
The CRP has not changed since April 21, 2025
The SED rate has not chged since Oct 31,2025.
I have not felt this good in 2 yrs. I take no other drugs. I feel so good that I don’t even know I have PMR 95% of the time.”
What’s wrong with this picture? Not a good start to the New Year for communication, maybe?
Stay tuned.