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@stonewheel Thank you for sharing your experiences. Like you, I exercise, eat green shakes and lived a pretty healthy life until PMR came on like a bandit. No rhyme or reason to it. I have not heard about UV light - interesting. I have heard from my rheumatologist that he is seeing more cases post the Covid vaccine. It's just anecdotal, but interesting all the same.
Be careful on the reduction. I went too fast as I absolutely hate prednisone and my PMR pain came back in a flash. I was down to .5 and am now at .75 and still have pain and stiffness. It's a balance as the side effects of Prednisone are sometimes worse than the PMR pain. I start Actevera after the first of the year and am hoping that will help. I'm in month 11 of this dreadful disease and am praying it will go into remission soon.
Best of wishes to you on your journey. This group and all the combined info and experiences are a huge help.
Aloha,
Cherie
Replies to "@stonewheel Thank you for sharing your experiences. Like you, I exercise, eat green shakes and lived..."
@cheraloha
I’m wondering if there are more post Covid cases of PMR because of the inflammation that Covid causes. Inflammation seems to be the source of most disease.
Who knows🤷🏻♀️?
@cheraloha
I got a wicked case of PMR 5 days after the first Shingrix vaccine and my 2 Drs concur it’s most probably an immune system overreaction. I never had an auto immune disease before this and in addition, while reading in a lot of different places where people give PMR feedback, A great many of them came down with it after a vaccine. I am not an anti-vaxxer, but it makes sense that sometimes your immune system decides to have a haywire reaction. I naïvely thought it would resolve itself sooner than later, though it is much better. Prednisone is a miracle drug and it has helped me a great deal. I don’t think I’m particularly sensitive to it but it’s amazing how trying to get from one and a half mg to 1 mg seems like crossing the Rubicon. That and flumidi…sp. lol. I feel like vaccine reactions are such a controversial subject that they ( Dr’s) just don’t really go there. Very distressing to have such an unknown syndrome. At least it’s under control somewhat
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@cheraloha Thank you for the reply. I hope that for you too, and soon. Positive mental attitude is my creed.