@suszy39 it hasn’t been easy and the majority of doctors I saw did not. Some even omitted my diagnosis in their clinical notes from the exams!

My case is particularly complicated since started right after getting the Moderna Covid Vaccine. First, I’m not an anti-vaxxer. But I am finally feeling vindicated somewhat as both US and EU research is proving that some of us have long-term neurological issues post vaxx. Second, we must advocate for ourselves. If I had stayed with my 2021 primary care provider, I’m not sure I’d still be here given the chronic pain.

My current primary care just emailed yesterday that she’s leaving my medical group, so I need to find a new one that’s open minded. In the meantime having a strong neurologist and pain specialist that have worked together and follow a common protocol is helpful.