Good Morning,
I have was diagnosed with Hashimoto’s several years ago, Recently I have been diagnosed with IGA Vasculitis so between the two there are days that I refer to as”not being able to get my feet underneath me” having such a lack of energy. I have also experienced the GI problems and not wanting to go for my morning walk after breakfast and coffee. It occurs after other meals but primarily breakfast.
It can definitely be a depressing a situation. I don’t mean to make this sound trite or belittling but sometimes there are things we must live with that cannot always be cured. What we can do is try to control all those things that we can:
Even if we don’t feel like it GET SOME EXERCISE there is research that definitely says the endorphins help us to feel better.
Write down what we eat. Often time the calories are higher than we think and the salt content is extremely high. DRINK water and keep your body hydrated.
Try to read something that gives us hope or inspiration in the morning or at some point in the day. We cannot go through these times alone and we need to lean on God for providing us with strength and courage.
Try to focus on one day at a time and even write down what was good in that day to help with our mind set.
If we find something that makes us feel better as far as a supplement or herb take it but perhaps talk to your pharmacist to know possible interactions with other medicines that you are taking.
Sometimes finding a new doctor that you can at least talk to and acknowledges our health issues can be beneficial.
There are so many people in this world struggling with horrific health issues and not all can be cured. I have struggled with Hasimoto’s , autoimmune issues for years and now recently IGA Vasculitis. We can ask why us but that doesn’t help and puts our minds in a defeating mind set. No doubt there are bad days ,weeks and years. Take it a day at a time and do EVERYTHING that we can that we can control to help our situations.
Auto immune issues are really a struggle and not cured but “handled”.
Believe me I almost never feel good but cherish the days that I do and know that those days are possible. Keep advocating for yourself, take with others and if possible find a group or individual that can help you with support. Also PRAY for strength, courage and patience to help you through the toughest days but we must be honest with what we are doing to help ourselves.
I have struggled with these issues for years. Know that it is possible even if there is no real “fix”. I know this may not be the response you might want to have heard but I can tell it can all help.
@jahm
My symptoms are very similar. I have Hashimoto's since 2012. My thyroid hormones levels are low, but not critical enough to initiate hormone replacement. I gained some weight and lost some energy back in 2012, but nothing critical happened from Hashimoto's alone.
Then in 2022, I was diagnosed with Systemic Sclerosis or scleroderma. Extreme fatigue, inflammation, GI issues. Vasculitis is a big part of inflammation associated with SS, in addition to skin thickening and fibrosis. Multiple immunosuppressive therapies were tried, but none really worked. Humira was most helpful with joints and GI inflammation. Ibuprofen 200 mg coated tablet taken with food - makes it better for 3-4 hours. But need to be careful with NSAIDs and potential GI bleeds.
Do you have anything that worked prescribed for IGA Vasculitis?