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PAIN PUMP: The source of my pain is in my spine. Chordoma. It's like lightening strikes: short, intense... random. Some days none. I do tylenol; I take pregabalin 100mg pills, one per night. But the pain keeps coming. I saw the pain pump doc at MSK... it could be a GO, but I wanted to speak to someone who has a pump.
What was it like to have the pump installed? How many visits did it take to get set up to moderate the pain?
Is it worth the hassel? This dreaded pain is happening as I write. I hope to hear from you.
Replies to "PAIN PUMP: The source of my pain is in my spine. Chordoma. It's like lightening strikes:..."
@jefffoxx The pain pump for your back is absolutely worth. There is a trial so you know what it will feel like. A bit uncomfortable but only for a short amount of time. Neurosurgery, then pain doc fills the pump, many rechecks to increase or decrease the meds going into the pump. Now I only go every 3-6 months then once a year for annual refill. Totally worth it!
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@jefffoxx Did you try a spinal cord stimulator? I had one which worded well for about two and a half years. I am currently on a pain pump. I did trial by single injection. First one was morphine...no help. Second one was with Dilaudid. It dropped my pain down from about a 7 down to about a 2. Permanent implant has not helped yet. But, I am continuing to have the output increased every few weeks. Some commenters have said that it took quite a while and a high dosage to get relief. I guess that is the case for me. Have you tried a spinal cord stimulator? Mine worked well for about two and a half years. Then it just stopped. No real explanation. I wish you well in your search. Happy New Year!