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Has anyone been diagnosed with pseudopheochromocytoma
Diabetes & Endocrine System | Last Active: 4 days ago | Replies (42)Comment receiving replies
@lisa11 , my mom has every symptom of this condition. She’s gone to the ER multiple times over the years with this being the only cause. Once treated, she recovers…until the next time.
Replies to "@lisa11 , my mom has every symptom of this condition. She’s gone to the ER multiple..."
@celia16
I had 3 visits to ER, then would recover. My PCP gave me clonidine and xanax. It got to the point where the clonidine wouldn't hold more than 1/2 a day, and it would shoot up again. I pleaded with her to help because the ER didn't so she gave me fairly high doses of metproprolol and doxazosin and proceeded to work me up for a pheochromocytoma. I was upset when found out I didn't have the tumor because the symptoms matched up perfectly. Started doing search and found out about pseudopheo. I feel anyone with this should at least have clonidine for emergencies.
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@celia16 May I ask what sends her to the ER? For me, it was high bp but I almost landed there feeling suicidal. That is something Ive never experienced and it was awful. I just wanted the intense anxiety and the feeling like I drank 40 cups if coffee to stop. It doesn't help that my husband has a quick temper with frequent outbursts. That sends my adrenaline into overdrive. So glad I found this group. It helps to see I am not alone.