← Return to Stage 1 lobular breast cancer, anyone no treatment after surgery?

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@jmab I applaud you for starting half-dose of Tamoxifen. I just started half-dose of Anastrazole after stage 2b ILC following surgery, chemo and radiation. The oncologist doesn't want to hear about my side effects (from Letrozole and Exemestane), so I'm simply reducing the dose and taking matters into my own hands. I do believe I am being overtreated as I am very petite and only need a tiny dose. I feel I need to try rather than take the risk of recurrence. Good for you!

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Replies to "@jmab I applaud you for starting half-dose of Tamoxifen. I just started half-dose of Anastrazole after..."

@brightlight66 thanks for the kind words! And, oh how I understand about oncologists "not wanting to hear" about side effects! I don't think younger people can grasp how precious these remaining years are to those of us who've made it this far. Being told at 72 to take a preventive medicine with side effects for 10 years (that may or may not work. Or even be necessary!) is brutal. Good for you, too, for advocating for yourself! I am definitely going to seek out another oncologist at some point, just for another opinion. But meanwhile, best of luck to us both as we trudge along on this unfamiliar path! I have really come to appreciate the resilience & grit of older women like us! Hope we both have a really wonderful new year, 2026!

@brightlight66 I am so sorry that your oncologist doesn't want to hear about side effects. I thought they were supposed to be taking note of them so they can advise other patients! With lobular (which I also had. Lumpectomy a year ago and radiation) I figure the longer we live, the more chance we have of them finding new treatments, etc. I've been on anastrozole for a year now and (knock on wood) the side effects haven't been too bad. I hate the hair thinning but, okay. The night sweats seem to have eased. Good luck to all of us! ❤️ Yes, it isn't easy spending our senior years being vigilant. I'd rather be drinking a pina colada at some pool...but we're alive. Recently I was also diagnosed with kidney disease. Shock! They have no reason why I have this. After sobbing and scaring my husband, I moved on. Bought the recipe books. Did more reading. Thanks to the internet (and forums like this) we can find other patients who share info/tips that doctors might know but don't have time to share. Happy New Year everyone! We are here.👍 Let's enjoy the lives we have. Put coconut cream in your coffee!