Connect
← Return to Endolymphatic Sac Tumor - Anyone have any experience?
Discussion
Endolymphatic Sac Tumor - Anyone have any experience?
Brain Tumor | Last Active: Dec 30, 2025 | Replies (10)Comment receiving replies
@jmarie711, we recommend not sharing personal contact information on the forum as per the Community Guidelines. Better to use the secure private message function.
I would like to point out that by sharing on the forum, your messages benefit many and we can all learn from each other and to help future members to connect with you too.
@jmarie711, have you discussed raditaion options vs surgery with your care team?
Replies to "@jmarie711, we recommend not sharing personal contact information on the forum as per the Community Guidelines...."
Connect
@colleenyoung I didn't know there was a secure private message function. I don't mind sharing things on the forum. Just wasn't sure how much someone else would want to put out there. Surgery details might be scary for others that aren't looking to necessarily see all of that.
We hadn't talked about just radiation. My doctor said we wouldn't do that. But I honestly felt like she was treating me like this rare case where she just wanted to be able to do the surgery. She was being so extremely pushy about it. That is why I'm working on getting a second opinion.