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And the Academy Award goes to... Pretender

Caregivers: Dementia | Last Active: 9 hours ago | Replies (21)

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I can't imagine how difficult that must be. The disconnect between what is real , where there's a man who looks like your husband , but this man is a stranger you don't really know. And when you need the real man so much to get through this, reality taunts you by giving you someone that looks like the man you knew but that man is gone and isn't coming back and you didn't even really get to say a proper good-bye to him.. My husband and I are now 80 and have known each other since we were 16. We have been married for 58 years . I am seeing my cognitive abilities slipping through my hands, as can he, and there are things I cannot be trusted to do now, and it's frustrating for us both. We're slowlly adapting to it, but at some point the divergence between who I was and who I am will be huge and he's going to be in your shoes. Do you have anyone who can stay with him for a bit while you go do something for yourself (a massage or a facial, a movie with a friend, or just a lunch where you can be a little bit of your old self for a little while?) As for massages, I believe that Grief can take a strong hold on your body--you're grieving a loss of life as you knew it-- and if subtle hints that she has spent far too much time with you and should move along to the next person haven't worked, another way to show Grief the door is to let a masseuse do it. I have no scientific evidence of this but I just feel very strongly that it helps. If you're depressed (which would actually be a rational response to your reality), perhaps your doctor could give you something to take the edge off a bit. Are there any things you can think of that you used to enjoy that you can do a little bit of? If you enjoyed playing bridge, that may be far beyond his capabilities at the moment, but other simple card games like Fish, Battle, or Old Maid might be doable and bring back a little bit of fun. I know it's hard t o have the energy or interest in re-framing your life, and you truly do have your hands full. But if you could do some little things that might give you some relief and a smidge of joy, that could give you energy to do more things to make your life a tad easier. There won't be a silver bullet solution, but if you can't make a big chunk of changes, maybe you can do lots of little things and put them together into a lovely patchwork of pleasantness every now and then. You can't change your reality. The only thing you can change is how you deal with your realitly.

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Replies to "I can't imagine how difficult that must be. The disconnect between what is real , where..."

@jatonlouise
Hi, and thanks. I do have a respite care facility where I live, and plan on making a lunch date with a friend while he's there.
Things that bring me joy are baking and watching baking shows, also talking to loved ones or being outdoors.
Sometimes he'll play a game with me, not as often as before his diagnosis.
Thanks for chiming in with great ideas. 😊

@jatonlouise thank you for all the suggestions. Massages are a godsend and it helps to release all the tension in my body. At what point did you admit that you have a cognitive decline issue? I am unable to get my husband to admit it and he gets quite crabby when I ask him questions regarding his abilities. He still thinks the adult daughters do not know. Last week he told our 34 year old that I would not let him buy a new vehicle with safety sensors(we have a 2020 and a 2023 cars). He failed to tell her that he asked for a 73K pick up truck. I do not see him driving for that much longer. He only drives in our small town. I drive anywhere farther than 10 miles.

@jatonlouise What a gift you gave @judimahoney sharing your perspective from not just the caregiver but the person who has the cognitive abilities slowing fading away. I was amazed this morning, the start of a new year, reading that "patchwork of pleasantness" you talk about with your caring suggestions on how to overcome the grief and sadness she is feeling - I'm sure most caregivers, like me are feeling. I was devastated when my husband got his MCI diagnosis, his abilities are slowly fading away too, but I have such a steadfast resolve, to try to capture every moment I can with him during the good and not so good days. For me, I'm finding my grief is more fear. Fear of the unknown, but I have courage and clarity, in God's light as I try to work through this with my husband, my friend, my buddy, of 42 years. Thank you for sharing, and in doing so, giving me hope in your clarity of message to every caregiver having to deal with the reality you talk about. Your poignant message is so meaningful as we start the new year. Thank you.