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DiscussionAnd the Academy Award goes to... Pretender
Caregivers: Dementia | Last Active: 9 hours ago | Replies (21)Comment receiving replies
Replies to "I can't imagine how difficult that must be. The disconnect between what is real , where..."
@jatonlouise thank you for all the suggestions. Massages are a godsend and it helps to release all the tension in my body. At what point did you admit that you have a cognitive decline issue? I am unable to get my husband to admit it and he gets quite crabby when I ask him questions regarding his abilities. He still thinks the adult daughters do not know. Last week he told our 34 year old that I would not let him buy a new vehicle with safety sensors(we have a 2020 and a 2023 cars). He failed to tell her that he asked for a 73K pick up truck. I do not see him driving for that much longer. He only drives in our small town. I drive anywhere farther than 10 miles.
@jatonlouise What a gift you gave @judimahoney sharing your perspective from not just the caregiver but the person who has the cognitive abilities slowing fading away. I was amazed this morning, the start of a new year, reading that "patchwork of pleasantness" you talk about with your caring suggestions on how to overcome the grief and sadness she is feeling - I'm sure most caregivers, like me are feeling. I was devastated when my husband got his MCI diagnosis, his abilities are slowly fading away too, but I have such a steadfast resolve, to try to capture every moment I can with him during the good and not so good days. For me, I'm finding my grief is more fear. Fear of the unknown, but I have courage and clarity, in God's light as I try to work through this with my husband, my friend, my buddy, of 42 years. Thank you for sharing, and in doing so, giving me hope in your clarity of message to every caregiver having to deal with the reality you talk about. Your poignant message is so meaningful as we start the new year. Thank you.
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@jatonlouise
Hi, and thanks. I do have a respite care facility where I live, and plan on making a lunch date with a friend while he's there.
Things that bring me joy are baking and watching baking shows, also talking to loved ones or being outdoors.
Sometimes he'll play a game with me, not as often as before his diagnosis.
Thanks for chiming in with great ideas. 😊