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Endolymphatic Sac Tumor - Anyone have any experience?

Brain Tumor | Last Active: Dec 30, 2025 | Replies (10)
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I wonder why radiation wouldn't initially just be a route to take. Especially for such a small tumor like mine. The surgery seems so invasive. It sounds like there is a high recurrence rate. I would like to know more about your surgery, tumor size, etc. Can we connect by email?

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Replies to "I wonder why radiation wouldn't initially just be a route to take. Especially for such a..."
Colleen Young, Connect Director | @colleenyoung | Dec 30, 2025

@jmarie711, we recommend not sharing personal contact information on the forum as per the Community Guidelines. Better to use the secure private message function.

I would like to point out that by sharing on the forum, your messages benefit many and we can all learn from each other and to help future members to connect with you too.

@jmarie711, have you discussed raditaion options vs surgery with your care team?

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