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MAC & Bronchiectasis | Last Active: 17 hours ago | Replies (429)
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@crepass Hi,I’m curious how you are doing by now? I started Brinsupri Dec 4 th and am interested in those ahead of me.I have BE and MAC. I was treated for nine weeks with an antibiotic for the inflammation and infection,( not the MAC regimen). I’m certainly better since treatment all started October 13th, but hoping for more progress yet with the Brinsupri. I do rigorous ACT twice daily.I'm getting along great with Brinsupri regarding no side effects.
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@heidi0974 - Hi, I have been waiting to post until I got through the "sick season". Happy to say, that I was pretty well despite the grandkids passing viruses back and forth.
My goal in October was to make it through an outside nighttime wedding. (without coughing). In early October I did have to go on antibiotics for 10 days but it cleared up by the wedding. Usually I would never bounce back so quickly. Sad to say I got sick after thanksgiving and my sputum came back with strep, so more antibiotics (fever, increased mucus, etc.)...but again, I cleared up after 2 weeks with no coughing, very little sputum, and no fever. I think I read that these URI's are one of the possible side effects of Brinsupri (and 6 grandchildren under the age of 7). But I feel better than I have in a couple of years. Of course, still doing all the saline nebs, and airway clearance and masking. Cindy