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Long-term side effects for Gem/Doce ttreatment for NMIBC?
Bladder Cancer | Last Active: Apr 2 10:17am | Replies (39)Comment receiving replies
I have found in some online research that chemo brain, which I have been experiencing in a way that gets a bit worse after each treatment, has some possible treatments.
Some physicians are prescribing modafinil, which is an add/adhd medication, to help with the symptoms of chemo brain. There have been actual studies done with some good results.
My oncologist has only told me that I have to seek care elsewhere for that. I did some research and found an online psychiatry office that handles medication for add and adhd. I have a consultation with someone from their office to discuss why I want to be seen, so they can direct me. I don't know if they will actually agree to see me for chemo brain medication, but I will find out on Wednesday!
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@bethcamp
I am updating my own post. I didn't quite understand that I was signing up for a "sorting hat" (Harry Potter reference). This company actually sorted me to set me up with an advocate who would help me navigate finding a psychiatric office that would be comfortable prescribing off-label use of the ADHD medication for treating my "chemo brain".
At first, that seemed excessive, but while I was waiting for a call back from the advocate (which is covered by my insurance...) I tried finding help on my own. After getting absolutely exhausted by dead ends - including my own PCP's office not taking messages correctly, I am waiting for the appointment with the Advocate.
I have no experience with psychiatry - the ones who can prescribe the modafinil, so perhaps the advocates can cut through some red tape. I guess it is worth a try if it helps with the chemo brain. I have six more months of treatment, and I know chemo brain doesn't magically go away after the last treatment. It lasts from one month's treatment to the next, so I am being realistic. I will update once I know more.