@jmarie711, I hope you saw the helpful post from @sadikiyanamama35, who also has experience with endolymphatic sac tumor (ELST).

I'm also tagging fellow ELST members like @kayjaylauren @sunshine80 @scottjg984 @kfox7818 @jodocybb51 to join the discussion and share their experiences.

@jmarie711, you've been through a long and winding road to diagnosis. I'm sure that has been hard. At this point, you're wise to get a second opinion at a top care center. Have you considered getting a second opinion at Mayo Clinic?