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Your tips for recovery after 35 radiation treatments for tonsil cancer
Head & Neck Cancer | Last Active: Mar 15 2:53pm | Replies (161)Comment receiving replies
I met will my ENT and Oncologist they both could not see or feel any cancer indicators which is very good. They are 91 percent confident the cancer is dead. I am scheduled for a PET scan end of January. I am 12 weeks post radiation and still have very limited taste that is disappointing and frustrating. The doctors both said in time I will improve and should see improvement 4 to 6 months. This seems nothing to them but a long time to me. I wonder if things really will improve because I have resorted to weekly milestones to gauge my change and change is SLOW.
Replies to "@lizzyj58 I met will my ENT and Oncologist they both could not see or feel any..."
The good news is my PET scan was clear. My oncologist and ENT both say I look great. They want to check me monthly but thrilled with my progress. The other point I am at 5 months and taste is still my struggle. I can taste some things but not only about 50 percent of what I think it should taste like. Then some days I do well and then struggle the next day. The doctors and my research all say at 6 months to a year things should really improve. I hope so this is gets very disappointing struggling with taste which I never thought I would ever do.
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@dragonfire Great news that your cancer is gone! I'm sure it's very frustrating not having taste buds come back yet, have you tried all types of salty and/ or savory? How about hot and spicy? Ice cream? My husband's taste buds are almost gone too but for some reason he can taste jello. Sincerely hope your pet scan comes back totally clear. Keep us updated.