@pn1998 , It's great to hear that you seem to doing well. Fingers crossed for your scans on the 14th. My first scans after starting the meds showed significant improvement.
I've tolerated the drug well. Liver and kidney numbers are high/low sometimes, but not bad enough to warrant a change in therapy or dose. I'll continue with Alecensa until the cancer mutates around it and it stops working for me. The alkpositive organization has really matured in recent years. They have worked hard to educate and promote the needs of ALK patients. They have moved additional treatments forward. For me, it's comforting to know that there are other options for treatments once my current med stops working. Even in my five years, I've seen new treatments get approvals, and others on the horizon. That's encouraging. I know if I would have been diagnosed 20 years ago, I wouldn't be here. I'm so grateful for the research and advancements that have been made. Happy New Year!