Gluteal tendinopathy - endless pain - losing my mind
Has anyone else dealt with this:
I'm now up to 5 months of daily pain, the the last two weeks have been the worst. I'm totally losing my mind.
First diagnosis was L5/S1, with disc pressing on nerve. I had cortisone shots, then an epidural. Not much relief, although with time the L5/S1 pain seems to have subsided. I've been doing physical therapy for almost the entire time.
For the past two months, increasing pain in left buttock and often sharp pain in left hip area. Diagnosed with piriformis syndrome, new MRI shows gluteal tendinopathy. I got two cortisone shots for that 6 days ago.
The hip area pain just keeps getting worse. I've had to cancel many plans and limit my activities. It's very depressing and is driving me crazy. Just wondering if anyone else is dealing with this and if they have any suggestions for both physical and mental health. Thank you.
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@bunstuffer
I’ve had to do a lot of effective physical therapy and a lot of proper, SLOW, as in isometric, exercising to improve. The shock therapy took a long time but really helped.
Good luck!
Hi all. I have had chronic outer hip pain for 8 months solid, resulting in a limp and severe pain. MRI showed some labral tearing (shredding was the word) and diagnosis was Gluteal Tendinopathy. No arthritis. The pain was deep, in the outer hip at the bursa with pressure, and also very very deep in my buttock. No amount of deep pressure seemed to help. So. I did PT, Meds, Injections, and was signed up for the end of this month 1/26 for Platelet injections, and also starting shockwave therapy, all out of pocket, due to complete and total desperation. Then. Get this. Went to Mexico in early December on vacation. My husband remarked in the airport on my limp (depressing!) and I was worried about walking, walking on sand, etc. So. I got a 'Beach Massage, with a highly trained licensed therapist. I opted for "Deep Tissue" and it was 90 minutes of lots of pain. Grimaced through the entire thing really. Elbows deep in my body. I am not exaggerating when I say, I got up off the table and walked to my beach lounger, with NO LIMP and NO PAIN. I though, "huh, that's weird" and figured the pain would be back soon. Crazily enough, the pain has not returned over a month later. I am in shock, and also very, very puzzled. I have had this for 8 months, and have also had bouts of hip pain over the years, with the injections, PT, and I even did massage a few times. But, this very professional, very Deep Tissue massage literally saved my quality of life. I am 61 in two days. I went snowmobiling a week ago, and worried the pain would return as soon as I did anything active again. Nope! I literally have no explanation for it. I cancelled my Platelet Injection and shockwave therapy, and am trying to find a good massage therapist here that specializes in Deep Tissue for pain. Just wanted to share my very unusual (and hopeful) experience. It's worth a try at just $100 to $150 for a 90 minute Deep Tissue Massage. Good luck everyone!
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3 Reactions@chrisc58 Hi just wanted to have you check my post. Your situation sounds exactly like mine. Could not stand on one leg, hard to walk, terrible limp. Diagnosed with Gluteal Tendinopathy, which I do think I had, but, injections cleared up, but, the lingering muscle pain deep in the buttock, burning pain, and stabbing pain every time I took at step. I am in complete disbelief and shock, after 8 months, but, I went to Mexico on vacation, had a beach massage, and lucky for me the therapist was truly professionally trained so I opted for the "Deep Tissue". I literally got up off the table, and no longer limp, or have pain. I can stand on one leg. It's bizzarre. I really would like to know what it was that helped? Did I have adhesions, or scar tissue from long chronic pain of Gluteal Tendinopathy? Maybe? To go from intense pain, for 8 months daily, to zero pain from a single beach massage??? Crazy. I had had other massages too, but, just not as painful and truly 'Deep Tissue' apparently. Because whatever she did saved me. I wish you the best.
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2 Reactions@karilccc
That's fabulous, Karilccc. After 13 months of intense pain from gluteal tendinopathy, two sets of shock therapy, excellent PTx, and lots of specific exercising on my part, for the last three weeks I've been walking without pain and yesterday walked up hills with only mild pain. SOooo happy not to have pain and to be able to walk and enjoy movement again!
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2 ReactionsOuch. Feel for you. I can relate to what you described. The pain injections can be given a few months apart right? I haven't had success with them but they help a lot of peeps.
Pain meds? Try ice packs then warm packs. Hope you're physio can continue & that the Dr. helps you with pain meds for now. Air hug.
I have a worse story that is still not resolved. Wonder I'd anyone had had tendon transfer surgery. I was first diagnosed with glut tendopathy 2 years ago. i did hip injections, ultrasound, Pt I am very active and fit and competitive ballroom dancer. I was never offered prp or shock therapy. The glut med is now completely ruptured and they can't just surgically repair it because the ruptured end is now, shrunken and infiltrated with fat.The limp is so bad that it 's making my already fused back and neck significantly worse, and i'm using a walker. I am trying to find a surgeon.Hopefully, on the east coast that I can drive to (i live in virginia) who does gluteal tendon transfer surgery?So in other words, they gonna take my glute, maximus, split it and use half of it for my glute med. This surgery is probably only been use for 4 or 5 years from my research... i have a great attitude, and I know this will get fixed.But if anyone has any experience with this, I would certainly appreciate your feedback
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1 Reaction@karilccc That’s wonderful! So happy you have finally found some relief from your pain. ☺️
@kathymrowse
I'm so very sorry that you're suffering so. There's a surgeon at Ohio State, Dr. Nabil Ebraheim, who does tendon transfers. However, before you go that route, do you think you should try PRP or shock therapy. Tendon transfer rehab takes at least a year, if I understand it correctly.
Wishing you the best, and keep us posted. :>)
That is such good news. So glad you feel better. Good example of why we should keep trying & never give up. Thanks for posting this.
@karilccc
@kathymrowse