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Yes, Ageeth, I also have numbness in both feet, which is very concerning. I had been monitored the last couple years for MGUS but now have been recently diagnosed with Waldenstrom's lymphoma. However, the numbness along with excruciating foot/leg cramps at night have been ongoing for quite some time. I will begin some form of treatment in January. Not sure what to expect.
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@co64
Decades ago my mother’s neuropathy was deemed to be caused by Waldenstom’s, which destroys the myelin of the nerves. I believe that she had one treatment of a chemo drug but had a reaction. Her limb neuropathy progressed, her gait and balance worsened, and she developed dementia. While she was in a nursing home, I read about a doctor who was doing research to see if the dementia was another effect of the disease, but we could not participate due to my mom’s extremely poor health. I’ve since learned that there can be a familial connection - my sibling was diagnosed with Waldenstom’s last year.
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@co64
Thanks for your reply.
I started with chemo immunotherapy 2 months ago. I find it very hard but hopefully the pain, numbness and coldness will get less.
What is MGUS?