@diverdown1
I am 83 years of age and 5 years with L.C. and relate to everything you've said. Thank you for the links.
Take a look at the free YouTube sites of Broken Battery and also the Bateman Horne Center. It feels good to see others talking about our condition with some compassion and understanding.
I'm managing my symptoms holistically and take A LOT of supplements - mostly Amino Acids which help repair the mitochondria which in turn provides my body with energy. In addition, I practice YogaNidra twice daily with Ally Boothroyd on her free YouTube Channel. After my morning session, I usually feel up to taking a shower. I have a hand-held device, so at the end of my short shower, I turn the temperature to COLD and spray my neck, my arms and my legs (briefly) which stimulates my vagus nerve. By the time I step into my underware, I feel just about normal and enjoy 2 (sometimes 3) hours of energy and can leave my home and do an errand or two.
Mind you, though, this is not every single day. The cold affects my body negatively. I believe I have MCAS (Mast Cell Activation Syndrom) and I take Luteolin+Rutin to help mitigate the affects.
For more help, visit the free YouTube channel of Gez Medinger - he is 6 years L.C. and offers a wealth of information.
My best to you,
Pam