← Return to PMR relapse symptoms

Discussion
abbeyc avatar

PMR relapse symptoms

Polymyalgia Rheumatica (PMR) | Last Active: 8 hours ago | Replies (90)

Comment receiving replies
Profile picture for Mike @dadcue

@aisp3b

"I must fix my knee to proceed with my decrease in PMR meds."
---------------------
My knee replacement surgeries were good for a 10 mg reduction in my prednisone dose. Surgery for trigeminal neuralgia was good for another 10 mg reduction.

Being on prednisone to treat PMR isn't an excuse for not being treated for other conditions. However, prednisone was the excuse for postponing my lumbar fusion surgery for severe spinal stenosis. The spine surgeon was "reluctant" to proceed with that surgery because of prednisone.

When it was all sorted out and done, I still had PMR and on 10mg of prednisone. Actemra (tocilizumab) allowed me to taper off my last 10 mg of Prednisone.

I don't have PMR relapses anymore while being off Prednisone but I still have severe lumbar spinal stenosis.

Jump to this post


Replies to "@aisp3b "I must fix my knee to proceed with my decrease in PMR meds." --------------------- My..."

@dadcue Are you still on Actemra after being off prednisone?

@dadcue I had spinal surgery for spinal stenosis in 2020. I did not have fusion. I had a laminectomy. It helped tremendously for a few years but I just think my arthritis is appearing in other vertebrae. I don't think it is related to PMR however I keep in mind the Predinsone Withdrawal Symptoms. Check this out. I think it is very helpful...
https://canadiancentreforaddictions.org/prednisone-withdrawal/