New diagnosis - looking for answers/suggestions

Hi. I'm sorry about your bad news. We got ours this September. My "words of wisdom": Take one STEP at a time. Enjoy every moment. If you are a Believer, remember His will be done. He has you in His hand. He will get y'all through it, even though it requires endurance. When your hubby starts looking malnourished, or even before, start talking about a feeding tube between yourselves and with his oncologist. It relieves the stress of swallowing pills and the horror of stuck foods. Most importantly, it ensures he gets the nutrients he needs to fight back. Bill says he has been through 2 chemo treatments and it's been tough, but looking forward to more time with family helps him get through this, as well as trusting the Lord for more time in this world. Blessings!

So sorry and knowing what you are going through. Regarding malnutrition, I presume that you know about all the different liquid meals, here is a recent link: https://connect.mayoclinic.org/discussion/needing-a-meal-replacement-drink/
And regarding bloating, etc.: Perhaps try drinkable bacteria: https://omnibioticlife.com/
They have a wonderful consultation service, ask them, they can help.
Hope this helps.
All the best and never give up, neither your husband nor you. Everything coming up will be tough, also on you, but keep believing in a good outcome and never ever give up. Never! It is worth it.

I tried liquid hope as my feeding tube material and after it taste like a squash and it's all vegan with no chemicals or artificial sugars or onions. They also make it in a flavor called nourish, which is in a fruit flavor. Your doctor can call the manufacturer and get free samples for you. See if that might work. I also went on a low FOD map diet. I have a lot of food intolerances I send good thoughts your way.

I'm so sorry to learn of this. I will say a prayer of strength and courage for you both. I am about 3-4 weeks ahead of your husband with something similar - though my upper stomach and GE junction area also impacted. My 3rd FLOT will be on 1/8, so I will think of your husband then. I do not yet have a feeding tube, but I have suffered great weight loss and know I need the nutrition and weight management to fight this. I dread it, but sometimes we have to do what we don't want to in order to beat this. I continue to try and shred/blend my food so that is in a smaller condition for me to swallow (with lots of liquid!), otherwise food gets blocked. For some of the early constipation, I've used Miralax for days on end. It's safe and helpful. I haven't had pain - although last night it felt like I was getting pinched/twisted at the tumor site...I hope that just means the FLOT is attacking it. After my infusions I did develop severe neuropathy and that is my next biggest thing I'm working through - so I wear gloves and try to stay warm throughout the day. I hope your husband experiences minimal side effects but starts getting the relief he needs. Thank you for walking this journey with him. Take care of yourself too because some days it seems just as hard for the caregiver.

I know how hard it is trying to navigate all the issues with this horrible disease. My husband is one year post op, he has a j-tube for nutrition. He has not eaten or drank anything for over a year. We have found Katefarms 5 cartons daily and one packet of pro-stat for protein has been excellent for keeping his weight stable. For pain he gets 6 mg hydromorphone, for constipation he uses colace. It’s hard, but keep trying different things until you find what works. I know it’s hard on your husband, but it’s also hard on us. Take care of yourself, it’s important.