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PMR relapse symptoms

Polymyalgia Rheumatica (PMR) | Last Active: 8 hours ago | Replies (90)

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Profile picture for aisp3b @aisp3b

@kensterfly My PMR started right after I had a torn meniscus treated; drained water, gel shots that did nothing and finally a cortisone shot that did the trick. I suffered with my knee for a good month before I had the cortisone shot on my knee. My neck and upper arms were feeling discomfort when I woke up in the AM but I thought I just slept funny. Soon after, my thighs started to feel funny. At that point I knew something wasn't right. I visited a PC Doc who told me to take warm baths and drink water with electrolytes. That did not help. My 2nd visit to the PC Dr told me to take Magnesium Glycinate and to make an appointment with a Rheumatologist. Within a couple of days I woke up and could not move my arms and legs. I was scared. As the day went on I improved. The next day the same thing happened. After it happened on the 3rd day I Googled my symptoms and PMR was the diagnosis. Steroids were required. I happened to have a prednisolone pack in my house and self medicated. I was brand new within an hour. I followed up with a Rheumatologist last December 2024. I was started on 20mg/day and am now down to 2mg/day. My knee pain has resurfaced and became very swollen. I had been at 1,5mg/day. PMR symptoms were starting to come back so I had to bump back up to 2mg/day. So far so good. I must fix my knee to proceed with my decrease in PMR meds.

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Replies to "@kensterfly My PMR started right after I had a torn meniscus treated; drained water, gel shots..."

@aisp3b

"I must fix my knee to proceed with my decrease in PMR meds."
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My knee replacement surgeries were good for a 10 mg reduction in my prednisone dose. Surgery for trigeminal neuralgia was good for another 10 mg reduction.

Being on prednisone to treat PMR isn't an excuse for not being treated for other conditions. However, prednisone was the excuse for postponing my lumbar fusion surgery for severe spinal stenosis. The spine surgeon was "reluctant" to proceed with that surgery because of prednisone.

When it was all sorted out and done, I still had PMR and on 10mg of prednisone. Actemra (tocilizumab) allowed me to taper off my last 10 mg of Prednisone.

I don't have PMR relapses anymore while being off Prednisone but I still have severe lumbar spinal stenosis.