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PMR relapse symptoms

Polymyalgia Rheumatica (PMR) | Last Active: 8 hours ago | Replies (90)

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Profile picture for kensterfly @kensterfly

I have been in full remission for ten years. I went through a very slow Prednisone taper over about 18 months. I still had at least one half-step to go. My Rheumatologist said “you’re done!”

But, over the past several weeks I am having the exact symptoms that I experienced at the beginning of my first PMR flare: sharp, but erratic, pains behind my left knee and back of the calf. Some minor soreness in left upper arm and shoulder. I originally went to a Sports Medicine doctor who sent me for an MRI. She declared a torn ACL though I had not done anything to injure it. A few weeks later, I went in with severe shoulder pain. She gave me three steroid shots as well as drain a huge amount of liquid from my left knee.

A week or so later, I could barely move. I couldn’t get into my primary so went to the ER. I had been studying my symptoms which included terrible night sweats and rapid weight loss.
I told the ER doctor to test me for PMR and it came back positive. He gave me a 60mg dose of Prednisone.
An hour later I was already feeling a bit better. This started me on the 18 month path to remission.
I truly hate the thought of going through that again.

I’m going to ask my primary to run the proper blood tests. Hopefully, it will come back negative so I can focus on another source of my pain. It just scares me that it’s the same pain I started with a decade ago.

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Replies to "I have been in full remission for ten years. I went through a very slow Prednisone..."

@kensterfly My PMR started right after I had a torn meniscus treated; drained water, gel shots that did nothing and finally a cortisone shot that did the trick. I suffered with my knee for a good month before I had the cortisone shot on my knee. My neck and upper arms were feeling discomfort when I woke up in the AM but I thought I just slept funny. Soon after, my thighs started to feel funny. At that point I knew something wasn't right. I visited a PC Doc who told me to take warm baths and drink water with electrolytes. That did not help. My 2nd visit to the PC Dr told me to take Magnesium Glycinate and to make an appointment with a Rheumatologist. Within a couple of days I woke up and could not move my arms and legs. I was scared. As the day went on I improved. The next day the same thing happened. After it happened on the 3rd day I Googled my symptoms and PMR was the diagnosis. Steroids were required. I happened to have a prednisolone pack in my house and self medicated. I was brand new within an hour. I followed up with a Rheumatologist last December 2024. I was started on 20mg/day and am now down to 2mg/day. My knee pain has resurfaced and became very swollen. I had been at 1,5mg/day. PMR symptoms were starting to come back so I had to bump back up to 2mg/day. So far so good. I must fix my knee to proceed with my decrease in PMR meds.