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DiscussionHas anyone not had any treatment after non-invasive tumor removed?
Bladder Cancer | Last Active: 4 days ago | Replies (70)Comment receiving replies
Replies to "Oops. Correction. Either do or do not. My choice."
@iborg I think if you can tolerate the treatments it’s a no brainer. The evidence for preventing reoccurrence is so very strong. I had the same diagnosis as you, had the six initial treatments but started having issues with the BCG towards the end. I then had three maintenance treatments with side effects getting worse either each treatment. Had my second bout of maintenance finishing six weeks ago and my GP believed that it cause an autoimmune event resulting in reactive arthritis that has persisted in my hip and knee. So I think that’s the end of my BCG treatments but I’m glad I got what I could since I have been cancer free since the initial TURBT over 14 months ago.
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@iborg, whether to do treatment or not is always a hard choice. I hope you saw the various responses you got from several members living with bladder cancer.
So let me see if I completely understand your choice. You have already had surgery to remove the tumor. Pathology showed that the tumor was non-invasive, meaning it was early-stage bladder cancer confined to the bladder's inner lining (urothelium) and hadn't grown into the deeper muscle wall..
Now you are faced with choosing between chemotherapy in the bladder (intravesical chemotherapy) for 6 weeks or to monitor only. Do I have that right so far?
Intravesical chemotherapy (BCG) is typically used to treat cancers that are confined to the lining of the bladder but have a high risk of recurrence or progression to a higher stage. Did your cancer team mention that you are at high risk? Did they outline the pros and cons to treatment vs no further treatment at this time?