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← Return to Erosive oral lichen planus
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@zinnia55 I'm sorry your oral surgeon had no treatment and was, seemingly, unwilling to learn and figure out solutions with you. Did the dermatologist give you something to put on your gums or was it a pill that could help the gums? I have only seen an oral surgeon and a periodontist and both gave me topical treatments for the gums (steroids, magic mouthwash, dental paste). Re. losing teeth, I have lost teeth because, in my opinion, when the gums aren't healthy, food gets stuck, recession occurs, and teeth can loosen. As the disease progresses, the gums get more tender so it's hard to keep everything as clean as I'm used to doing. I do, however, believe in keeping teeth for as long as possible and I use bone tapping to try to strengthen all bones.
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@jeraberkana Hi yes the dermatologist gave me dexamethasone liquid as a swish and spit followed by tacrolimus ointment applied inside the mouth. I did this for about a month and it really started to lessen the disease in my mouth but the steroid side effects are not great either. So now I have been on low dose naltrexone 3mg per day for 21 days and it has helped soo much! I finally feel like there is hope, I also use the tacrolimus once a day and I bought a therpautic red light mouth piece of Amazon and I am up to 11 minutes a day. This is the best my mouth has been since May and I am hopeful in time it all goes away or I can stay on naltrexone long term. I have been on the LDN for 3 week and I am starting to have digestive issues so next week I am seeing if I can go to a sublingual form of the medication. I have also implemented a strict teeth brushing, flossing and rinse 3 x a day and a quick water swish after meals to keep it as clean as possible and I now go to the dentist evry 3 months. That has been helpful as well. So sorry abouth your tooth loss. Have you thought of seeing a dermatologist? Or look into low dose naltrexone see what your doctors say.