Hello, I’m in my 40th year with ME/CFS - (got it when I was 36). Many researchers believe Long Covid may be the same thing, but if not, it’s nearly identical.

PEM is one of the hallmark symptoms of Me/CFS as well. Navigating holidays over the decades of raising a family was extremely challenging - especially when our children were growing up. Some years better than others as the disease waxed and waned.

I’m in my mid 70’s now and when our 50 year old son and his wife come to visit for holidays they understand that I will spend most of the time in bed. They know that I may or may not be able to do much in the kitchen and are ready to take over and help.
This year I bought already prepared foods that they could put together. I get groceries delivered.

But all this took education over the years. Never be afraid to be bold and tell your family and friends what it’s like to live with a disabling disease that appears “ invisible “ to others. Find good articles to share with them. It’s frustrating because it’s impossible for others to comprehend, but it’s imperative that we protect our health .

It’s extremely important to PACE all of our activities- especially during holidays. Don’t be embarrassed by it. It’s what we have to do to survive and to still find some enjoyment in life in spite of our limitations.

Wishing you peace and comfort this holiday season. Here’s a link to an excellent organization I’ve belonged to since the 80’s that researches and advocates for ME/CFS and Long Covid. I’ve shared their helpful info with many people.
“What are ME/CFS and Long Covid”
https://solvecfs.org/