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DiscussionWhat do you do when seasonal "bugs" upset holiday plans?
MAC & Bronchiectasis | Last Active: Jan 1 11:45am | Replies (38)Comment receiving replies
Replies to "@pacathy So glad things truly have changed for the better for you "This is the first..."
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@blm1007blm1007 Here’s my little saga again-most have read it and can skip. : ) My first few nodules were found Aug 21 on X-ray from Urgent Care visit. F/u CT in Aug 22 showed trees-in-bud, ground glass and probable MAC. I saw a local pulmonologist Sept 22 who diagnosed mild asthma, said CT looked terrible and was poss MAC or from sinus drainage and started Stiolta with f/u CT Jan 23-no improvement on that. He called to give result and changed Jan f/u appt to May, 2023! He gave me ENT ‘s name, started Astepro and said he’d do bronchoscopy or PET scan if no better. Didn’t mention the bronchiectasis. He went on medical leave and I didn’t want to wait until June for a diagnosis. Penn’s first appt was August 2023 and I lucked into a cancelled appt March 2023 at Mayo. That’s when I started airway clearance, etc. and my bronchoscopy results came back negative for MAC in May. Sinus issues were also aggressively addressed by local and Penn ENT that spring to avoid surgery. I continued to pick up everything going around that year and Penn pulmonologist suggested I try hypertonic saline in fall 2024. I gave that and medicated sinus rinses credit for this good health until a couple months ago when it occurred to me that I’ve also been taking 4 antihistamines a day (required to get biologic approved) for my relapsed urticaria much of that time. Bottom line, I think…I get fewer infections with fewer secretions.