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It is extremely frustrating. I can completely relate. The PEM that goes along with this damn virus is the worst. Another piece is the people that do not believe or understand it. I can have a good day, where I can function and then there are days where I am only able to lie on the couch. I was always very active and in the best shape of my life when I got hit with Long COVID. Going on 3 years and 5 months now. I take medication that helps me function, but even then, there are days when I am just unable to do much. Have you heard of the web publication the "Sick Times"? Also there is a website that I follow. I will put the links in this comment. Hang in there. You are not alone and even hearing that I feel alone sometimes, but I do get so much from this site from people like you.
https://thesicktimes.org/
https://recovercovid.org/
Replies to "It is extremely frustrating. I can completely relate. The PEM that goes along with this damn..."
@diverdown1
I am 83 years of age and 5 years with L.C. and relate to everything you've said. Thank you for the links.
Take a look at the free YouTube sites of Broken Battery and also the Bateman Horne Center. It feels good to see others talking about our condition with some compassion and understanding.
I'm managing my symptoms holistically and take A LOT of supplements - mostly Amino Acids which help repair the mitochondria which in turn provides my body with energy. In addition, I practice YogaNidra twice daily with Ally Boothroyd on her free YouTube Channel. After my morning session, I usually feel up to taking a shower. I have a hand-held device, so at the end of my short shower, I turn the temperature to COLD and spray my neck, my arms and my legs (briefly) which stimulates my vagus nerve. By the time I step into my underware, I feel just about normal and enjoy 2 (sometimes 3) hours of energy and can leave my home and do an errand or two.
Mind you, though, this is not every single day. The cold affects my body negatively. I believe I have MCAS (Mast Cell Activation Syndrom) and I take Luteolin+Rutin to help mitigate the affects.
For more help, visit the free YouTube channel of Gez Medinger - he is 6 years L.C. and offers a wealth of information.
My best to you,
Pam
Thanks so much for "The Sick Times" resource!
I am with a few months behind you on dealing with this.
The same thing happens to me.
I don't know how my husband stands this. He has to do everything for me and he is a lot older.
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@diverdown1 my kids don’t believe me when I tell them this is a life time thing. My arms and shoulders are so sore, I have to leave everything on kitchen counter. I do one task for 5 min. And I have to plop on couch. I can’t lift any thing more than a mug.im taking mucus pills to stop the mucus. Doc said try to work up to a