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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jun 8 11:23pm | Replies (2096)Comment receiving replies
@johnbishop my Sed rate is 47 my CRP is 7, both elevated. I still have symptoms and feel horrible. I was on prednisone for 1 year I am currently being weaned off of it and was told I never had it….so what do i, have no other diagnosis given!
Replies to "@johnbishop my Sed rate is 47 my CRP is 7, both elevated. I still have symptoms..."
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Hello @gem3850, Sorry to hear that you haven't received much help and treatment from your rheumatologist and doctors. I think that the following discussions started by @dadcue might be helpful for you to understand more about PMR:
-- Comprehensive Overview Of PMR: https://connect.mayoclinic.org/discussion/comprehensive-overview-of-pmr/
-- Is progress being made in understanding PMR/GCA?
https://connect.mayoclinic.org/discussion/is-progress-being-made-in-understanding-pmrgca/
You mention you still have symptoms and feel pretty bad. If the prednisone hasn't been providing any relief for your symptoms, have you considered seeking a second opinion or help from a different rheumatologist/doctor?