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← Return to Spasticity due to UMD (Upper Motoneuron Disorder)?
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Spasticity due to UMD (Upper Motoneuron Disorder)?
Brain & Nervous System | Last Active: Feb 8 11:11pm | Replies (10)Comment receiving replies
@pennycurious1 if you mention what part of the world you r in, perhaps someone here can steer you towards one.
I don’t think a spinal cord center would be exactly right for you, though you can ask. I know at the one I attend, the morning appointments are dedicated to out of town guests who do an intensive 3 week course while staying at a nearby hotel. If you find a really good place that is far away, you could inquire about this possibility
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@laura1970
I am still waiting for the lab results for SFN. I live in Austria, Europe, and I am totally frustrated how slow and careless medical services are here. I will not receive any further neuro-muscular diagnostics (UMD, spasticity, muscular disorders etc.) from the hospital until SNF can be ruled out. For pain management I have been referred to a pain management center: first available appointment in 4months! My condition is worsening week by week, I have pain almost 24/7, burning tongue non-stop and my leg muscles are getting weaker, now also starting in both hands - a weird feeling of stiffening and cramping. I started taking R-ALA and will continue to take it even though I feel no difference.
Hopefully will have news soon.
But let me thank you all here for sharing and caring and reassuring people like me that we are not alone with our frustrations and pain💕❤️
Sending love to all of you out there!