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Anyone with Systemic Sclerosis or Scleroderma?

Autoimmune Diseases | Last Active: 10 hours ago | Replies (12)
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I have not had a stem cell transfusion before. I used to get iron infusions because I was anemic and suffered from severe restless leg syndrome. It was horrible. Now I'm taking 600 mg of Horizant which is an extended release gabapentin. It helps but I still have restless leg problems.

My doctor wants to cut back on my iron meds, because my Ferritin level is 626, but it's making RLS so much worse again.

So from my systemic scleroderma, Lupus, Fibromyalgia, and Reynauds, I am quite a mess. So, so tired too. But if I nap I don't sleep at night.

Wishing you my best!

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Alta Net | @altabiznet | Dec 27, 2025

@grandmal65
Thank you for sharing your story. I feel similar to what you have described. Just FYI from experience with my doctors:
GI bleeds: possible with scleroderma, but not common. May be other causes, like medications or ulcer. Gabapentin is not associated with GI bleeds, but NSAIDs are (acetaminophen, ibuprofen). May be worth taking a look at your medications list and getting a second opinion with gastroenterologist to do endoscopy. This test will show where GI is bleeding and why.
Google search for GI Bleeds and causes: https://www.bing.com/search
Fatigue: vitamin deficiencies can be contributing. Vitamin D, folate, and B12 would be the most common. Blood tests may help.

Will be posting more information.
Wishing you all best!

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