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How long have you been on Orgovyx (relugolix)?
Prostate Cancer | Last Active: Jan 9 12:02pm | Replies (44)Comment receiving replies
@jeffmarc
Jeff, I've had 3 PSMA pet scans. One when my PSA was 22. The second when it was 12 and the 3rd when it was 32. All showed no sign of cancer.
I've been on Nubeqa and Orgovyx for 9 months now.
Replies to "@jeffmarc Jeff, I've had 3 PSMA pet scans. One when my PSA was 22. The second..."
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@denkea
You said above “one month on Orgovyx and Nubeqa and It went down to .4.”
Has it gone down further since or has it stayed right at that level?
Just interested to know, with somebody who’s had it for so long, what’s going on?
At one of the ancan.org weekly advanced prostate cancer meetings somebody came in who had his cancer come back after 30 years, had a Gleason nine, and one treatment got him 30 years. It goes dormant for some people. Really interesting results.
You didn’t mention how long ago you had surgery and radiation. Were you on active surveillance for a long time? My brother was on it for about six years before his cancer finally needed treatment.