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Profile picture for ropnrose @ropnrose

@dadcue Your insight on this terrible disease is always helpful. You and others in this forum help me cope with this disease.

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@ropnrose
The giant cell temporal arthritis never goes away.
It's two blood work that you need to see if your temporal arthritis is inflamed. It is SED RATE AND CRP if they are high your dr will determine if you need to go on prednisone. That is the only medication that helps the temporal arthritis and the blood work go down. Nothing else works.
I am on my 3yrs on infusion ACTEMRA. the first year that I got diagnosed with temporal arthritis I was on injections every week.