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@jeffmarc
Jeff ~~~ Been dealing with this crappola for 30+ years. Rad P followed by Salvage Radiation a year later.
PSA stayed low for a long time. Started ADT approx 3 years ago.
Lupron sucks. I've had 3 PSMA scans (the last was when my PSA was 32) all showing no signs of cancer.
Nubeqa a Orgovyx started March of this year.
Replies to "@jeffmarc Jeff ~~~ Been dealing with this crappola for 30+ years. Rad P followed by Salvage..."
@denkea
Rereading your original comment, I see that you’ve only been on Nubeqa 1 month, and have probably had a PSMA PET scan recently, and it showed nothing.
I’m sitting here watching football and reading these in between plays and I am missing stuff. Sorry about that.
If your PSA went down from 32 to .4 in one month it sounds like you’re in great shape. Your next test will probably be undetectable. As I’ve mentioned, I’m 25 months undetectable with those two drugs. I was on abiraterone for 2 1/2 years before, and was only undetectable one month. When I stopped they found and zapped a metastasis on my spine and one month later I went undetectable. Found it in my first PSMA pet scan. Nubeqa Works really great, I know a lot of people on it and they are all doing well. The only people I know that have had problems with it, have stopped, taking it and tried starting again, and it has not been as successful for some of them.
You could get two or three years out of your current treatment before you have to worry about the next step.
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@denkea
Well, that more clearly explains what’s going on. 30 years, and I thought 16 years was a long time to live with it.
Orgovyx and Nubeqa have been great for me. Kept me undetectable for 25 months after all these years. The two together have definitely reduced my side effects. The thing is, they never get rid of them completely so you’re always having to do things to work around them and keep your body in good shape.
.4 after all this time is a pretty good number. Probably still too low to get a PSMA pet test, though some doctors will do it at that point. You haven’t had chemo or Pluvicto yet. Hopefully, by the time your PSA starts rising some more they come out with a new drug. That’s what I’m hoping for, my Undetectable time with Nubeqa Is going to end eventually, And I’m hoping for the next discovery so I have something more to go on. In my case, I can take a PARP inhibitor since I have BRCA2, But I’ve been told it usually only lasts a few months when you’ve been treated as long as I have been.
Dealing with this is a real pain, but it’s better than the alternative. And people in our position aren’t feeling any pain at least, Life can go on pretty much as normal.
Here’s hoping for the best.