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Polymyalgia Rheumatica (PMR) | Last Active: 19 hours ago | Replies (72)
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I’m in the process of decreasing my prednisone I have found that my pain is increasing my doctor suggested I up at 1 mg but I’m still in a lot of pain
Actually, my pain is mostly in my shoulders and arms, but it does resonate down to my legs, it’s lasting all day
Replies to "I’m in the process of decreasing my prednisone I have found that my pain is increasing..."
@dkucan from speaking with several doctors the conscientious is if the pain lasts more than a short time in the morning it’s likely still PMR.
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Welcome @dkucan, Tapering off of prednisone can be a challenge. My first time took 3 and half years with the last six months going back and forth between 1 mg and 1/2 mg before I could finally stop taking it without having significant pain the following morning. Most of my pain was also in my shoulders and arms. You might find a discussion started by @dadcue helpful:
-- How to Slowly and Safely Taper Off Prednisone but ... no set rules.
https://connect.mayoclinic.org/discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules/
Some folks including myself have found it helpful to keep a daily journal of their level of pain/symptoms along with their dosage of prednisone. How long have you been on prednisone for PMR? What was your starting dose?