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How long have you been on Orgovyx (relugolix)?

Prostate Cancer | Last Active: Jan 9 12:02pm | Replies (44)

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Profile picture for boniyabes @boniyabes

I had prostatectomy in 2013, and had radiation of the prostate bed thereafter. My PSA was .06. When my PSA was rising I told my MO that I just want to observe. But when my PSA was 5.5 in Oct 2024, my MO told me that we have to do something. I had a PET scan and the cancer cell has spread out in different parts of my body but they are small and scattered that radiation is not feasible. He told me to start taking Lupron and Zytiga. But I did some research and I read online that Orgovyx is the new medicine for prostate cancer, so that is the medicine that I suggested to my MO for me to take. He did look online and he said if I want it, he can order it for me. I started taking in Orgovyx in Oct 2024 and in Feb 2025, my PSA was .1 so I suggested to my MO that I take the Orgovyx every other day instead of everyday because it is causing a lot of pain at the back of my right leg but he did not recommend it, and that I should just drink one everyday. But in May 2025, I started drinking one every other day anyway and then my PSA rose to ,3 in Aug 2025. I then suggested to have a PET scan but he said that PET scan is not necessary when PSA is this low. I will have lab work in Feb to check my PSA. I am praying that it will be lower than .3 because I have been back to drinking one Orgovyx everyday since Aug 2025.

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Replies to "I had prostatectomy in 2013, and had radiation of the prostate bed thereafter. My PSA was..."

@boniyabes I just had lab work this week and my OSA is now .54 and I am not sure what us causing it to rise. It was .3 last Aug 2025. Maybe I will ask my
MO to prescribe me Nubeqa when I see him next month.