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Being treated for Gleason 9

Prostate Cancer | Last Active: 3 days ago | Replies (33)

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Profile picture for chippydoo @chippydoo

@khabib It sounds like you need to take control of your treatment. Some doctors will prescribe procedures meeting their needs not yours. If a CT is the only technology your doctor has access to, then I would find another Doctor even if you have to drive a long way for it. At this point I would be asking your doctor why a CT and not a PSMA ,which is a standard of care, at least in the US. Compliant old men accepting whatever is offered is a thing. Doctors offices are full of them. Advocate for yourself. Ask why as many times as needed until you get answers. I would suggest picking up the phone and finding a more sophisticated practitioner. If you can find a GU that would be great but a teaching or national hospital would also meet your needs if possible. We are in different countries and they operate differently.
I suspect my diagnosis process is very similar to others on the forum.
My diagnostic process follows from 3.5 years ago:
PSA 3-increased 1 point in 2 years which got my Dr. attention.
DRE Positive for nodule
4K Blood score-positive (PSE test is the most current I believe)
MRI-positive-result local
Fusion Biopsy-G9 Grade 5 (MRI/CT overlay for accurate targeting)
PSMA Pet for spread-Negative
RP surgery
BCR two years later .224
PSMA-Negative
Only then a CT scan for my radiation tats.
25 Session EBRT/with 3 months lupron followed by 3 months Orgovyx.
2 months post Tx. T-230, PSA undetectable. 6 Month in 3 weeks.
Best wishes, Merry Christmas and may you receive the best care possible with the best possible outcome for your new year.

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Replies to "@khabib It sounds like you need to take control of your treatment. Some doctors will prescribe..."

@chippydoo Thanks you so much for you advice and detailed information. Yesterday I received call for CT on Tuesday. I am traveling out of country on January 7, for full 4 weeks, as all travel with family was booked 2 months ago, before biopsy. Now I had no choice to cancel this scan and wait for another call in weeks from Cancer Clinic to discuss other options like PSMA. Thanks you for your reply. Merry Xmas and Happy new year