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Profile picture for laura1970 @laura1970

I completely understand your concerns. Now that you are having balance issues and numbness it seems clear to me that this is now a different ballgame. Has your urinary habits changed? It’s time to discuss difinitive treatment with your neurologist and surgeon. I believe you require a comprehensive neurologic physical exam. You already have the imaging. It is the combination of the physical exam (along with your history k or storytelling) and imaging that should decide the treatment strategy,

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Replies to "I completely understand your concerns. Now that you are having balance issues and numbness it seems..."

@laura1970
Thank you — I appreciate this perspective. That’s exactly how it feels, like things have crossed into a different territory now. I agree it’s time for a more comprehensive exam, I have not seen a neurologist. I would like an actual discussion about definitive treatment instead of continuing to chase symptoms. Yes, I have urinary incontinence.

@laura1970
I had the appointment with Dr. Julie Chan today at UF. Unfortunately, my experience was disappointing and discouraging to put it lightly. I was first questioned by her PA regarding why I was there, “who referred you? Did you come
On your own for a first, second third opinion or what? - which set a tone before I even met Dr. Chan. During the consultation, my symptoms — including bilateral numbness, tingling, and progressive pain — were dismissed as “not sufficiently correlating with the imaging”, as she had 2 pictures on the MRI view up and showed
Me the X-rays they took before the exam. SO, she recommends trying injections as a “diagnostic tool” and for me to see a neurologist, with the suggestion that something may be occurring within a nerve itself.
Having now received three entirely different explanations by two neurosurgeons and one PA for a neurosurgeon (who said herniated discs can move around to other places?? as to What’s going on yet same injection recommendations, this visit added to the confusion rather than providing clarity. She essentially alluded to without directly saying, I’m too young for any surgery that can help, this will not get better, she operates on patients in their 80s who “recover just fine” if it comes to her operating. Until it effects my spinal cord directly injections can but may not help.

@laura1970 UPDATE- I did have a second opinion conducted for the October MRI Report. Very concerning.