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It sounds as though you are quite appropriately burnt out. Consider discussing respite care so you can have a few days to a few weeks of rest.

Also, your husband’s age isn’t mentioned but with stage 3 CKD and dementia, he might qualify for hospice care. This might not be something you are willing to consider at this moment so let it ruminate or sit quietly in your head. Perhaps discuss it with doctor m family, trusted friends.

If you could get a social worker or case manager involved I think you would find it invaluable. A little extra care at home I think would go along way in maintaining your mental health.

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Replies to "It sounds as though you are quite appropriately burnt out. Consider discussing respite care so you..."

@laura1970 Perhaps thinking of Hospice as an additional resource, another person in your circle, rather than a death watch, will make it easier to accept. My mom had hospice nurses coming to the house and supplies (diapers, ensure, cleansing/calming wipes, etc) until she passed from COPD. It took 5 years. When it was time, we called the nurse, and she stayed with the family in the room and was a source of strength for us. She did a magnificent job preparing not only my mom but my siblings and I for that moment.

I believe Medicare pays for hospice and palliative care…at least it did then, not sure about now.

I hope y’all find some peace and joy on this holiday.