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How can a person be diagnosed with Neuropathy if they are not Diabetic
Neuropathy | Last Active: 12 hours ago | Replies (58)Comment receiving replies
I would like to thank each and every one of you who has taken the time to respond to my message. Each response has given me a little bit more of an understanding in regards to this. The one thing that I didn't hear anyone say was "Does the pain move a round to the point where you can not walk or in the morning when you first get out of bed your unable to start to walk without having to hold on to something?" I go through the burning and numbness and trying to explain that feeling to my friends is kinda hard. It's a feeling like no other.
So again thank you for your responses. Enjoy your day today and every day on Purpose...
Replies to "I would like to thank each and every one of you who has taken the time..."
@dinosoke absolutely me!!?It is absolutely frustrating!! I have it in both feet 🙈 Also a former dancer/gymnast/ long ago it has an extra humiliation when you can’t even not make a scene walking. I got to new heights recently, when my Apple Watch told me that “we have noticed you have had an unsteady gait lately.” Then they gave suggestions with all this one legged this and that! Yeah, right! Very stable shoes (and $) like Brooks Aris stability shoes can help some with not toppling as easy and some pain. I have to every other lace sometimes too. Now my foot drop I recovered from in 2010 has also returned partially in my big toe making a AFO necessary and a cane somedays, especially when I walk too much. I am going to ask for a parking permit, mostly for those times it’s at its worst. I am so sorry, it is the most frustrating thing, mine isn’t consistent either, so I can overdo and end up worse. I hope you will find enough little helps❤️🙏Maybe someday we can hope for a cure!
@dinosoke
In my pre covid support group there were very few members with non diabetic neuropathy - about 3 out of 15 group members including myself. All of us who did not have diabetes were confused as to what was happening to us. Idiopathic does not give any useful information. Much of the frustration was around the fact that doctors are not able to help us to improve our situation. My online searches have a pattern - early intervention is important … there is no intervention or treatment. I am old enough to remember when MS had the same medical response. One friend was finally referred to a psychiatrist because of her odd behavior. Suffering on top of suffering. Physical therapy to maintain strength is helping me and I will start acupuncture very soon.
I don’t know if this is at all helpful but I do believe peer support in important.
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@dinosoke
Diabetes may be the most common cause of PN but there are many others. Mine may be due to gluten intolerance--a sort of silent celiac disease. It also seems that the sensations people get are varied. I never had burning and most times I do not notice the neuropathy in my feet. Holding on to something might mean a balance issue for you and there are plenty of exercises to try to get balance back--a challenge as we age. Feet exercises that are designed to promote good alignment can help with balance. Wishing you well.