← Return to Endometrial Cancer: Noticing my blessings every day

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@inquirer Hi it sounds like you have researched and gotten a number of opinions on what is best to do given your situation. I wish my omentum had been removed because that is where the cancer recurred, but that was never suggested. My surgeon did not feel that having chemo to lessen that chances of recurrence was in order and advised against it. If he had recommended having chemo I would have had it. In retrospect, I'm not sorry that I didn't have it since there was no guarantee that it would prevent a recurrence. It's toxic poison that is going into your body and I feel that I would only want that if it was necessary as it was when my cancer recurred. As I've mentioned, I was fortunate that my cancer was knocked out after 6 treatments and I tolerated the chemo well. My CA125 was 400 prior to treatment and went down to 80 after 1 treatment and was down to 15 after 6 treatments. I wish you the best, I know it is not easy dealing with all the information and trying to make the best decision for yourself. I really only had one surgeon and one oncologist both at MSK and I did not take time to get second opinions...I moved quickly because of the aggressive nature of this cancer, that's what scared me. Thankfully I feel well , healthy and strong even though I continue to be treated every 4 weeks with a targeted chemo. I'm told there is no end to the treatment/maintenance so fingers crossed that it will keep this MF at bay !! Hoping remission for us all forever !!!

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Replies to "@inquirer Hi it sounds like you have researched and gotten a number of opinions on what..."

@alohman08 Yes, hoping for remission for us all. For you, could they have surgically removed the omentum when the cancer showed up there? I personally believe cutting it out is more effective than hoping chemo kills it, because often chemo doesn't kill it. Oncologist at MSK (Dr. Makker) did tell me that if mine returns, it won't be cureable. That's probably the norm but reading posts, people have had a few recurrences, then surgery, and are now still NED 10 and 20 years later.