← Return to Newly Diagnosed: 4.9 cm ascending aortic looking for support

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Profile picture for cacamik @cacamik

@houston13 thank you so much. I reached out to Prakash’s group to see about getting into a study of endurance athletes with AAAs. There isn’t one currently open but they offered a genetic study to me and my sister who has a stable 4.5 cm diagnosed 5 yrs ago. Do you mind me asking how old you were at time of surgery and whether it was emergent or elective and where/who did it?

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Replies to "@houston13 thank you so much. I reached out to Prakash’s group to see about getting into..."

@cacamik I was 54, almost 6 years ago, my surgery was in Houston at Memorial Hermann Texas Medical Center, surgeon Dr Anthony Estrera, an absolute delight of a person, he referred me to Dr Prakash and he has been my cardiologist since. Dr Prakash did a genetic study on me and my family, there had been other cases of aneurysms (I had a brain aneurysm also), my brother has 3 brain aneurysms and I know of at least 2 family members that have died of aneurysms. My genetic test did not show any of the known markers and he happened to be in the middle of a research on genetics and aneurysms, so he tested my immediate family as part of the research. My children both had brain scans and echocardiograms to ensure they were ok, they need to do it every 5 years. Dr Prakash also orders full aortic MRAs every 4 for me, 3 hours of test, groin, abdomen, chest and head in addition just to make sure nothing knew is developing. I was in very good shape when I had my surgery, always been active, never smoked, exercise consistently, my surgery went as smooth as it could have gone, out of the hospital in 5 days, back to work in 3 weeks.

Hope that helps