Hello!
Yes! Lots of updates actually…

After trialing MANY various treatments from hyperbaric oxygen therapy (caused temporary severe hearing problems), to various other antibiotic combinations, antivirals, and mixing/matching supplements…
I’ve found these to be MOST helpful and wish I would’ve stumbled across them sooner!

The number one thing I’ve learned is that mitochondrial dysfunction IS the main driver of most of my issues. So I bumped up CoQ10 to 500mg/day. And added other mitochondrial supports like Resveratrol and Berberine. These are my daily regular staples.

Then bc my biome was just not doing well… I finally did off label FMT. It really helped but not in the expected ways.

I tried the FMT for c diff treatment which is 10 days of capsules plus enemas. And found the enemas most helpful as my colon was super inflamed and irritated. The enemas really calmed me- a lot!

Of course this didn’t cure everything. It helped for like 4 weeks then I was back on antibiotics.
So I started researching how FMT is being trialed more cyclically for ulcerative colitis. So instead of thinking of it as one and done where you hit it heavy for 10 days straight. I decided to try cleansing with magnesium oxide prep, then doing 3-5 days of both capsules and then like 2-3 enemas instead of 9. Then I wait like a week or 10 days and add back my Rifaximin again. It’s been really moving the needle for me!

Also my GI suggested I just stay on Rifaximin daily and I have which helps to not have the big swings into dysbiosis I had to keep crawling back out of. It’s been stabilizing.

I’ve been noticing improvements with both eliminating and feeling better and tolerating more foods and some probiotics too! Huge win honestly bc I couldn’t tolerate anything!

The probiotics I’ve found gentle enough yet also helpful are infantis mainly. Then if I’m feeling great, I’ll add in longum.

But I do micro doses and wait a few days to see. I also do activated charcoal at night just one capsule to help sop up the excess toxins released from the bacteria, histamine, etc.

It definitely trial and error. And lots of listening to my body!

And I slide backwards and start again too.

But boosting and helping my mitochondria has really helped stabilize my crashes and then adding FMT for my gut is helping heal/stabilize my gut!

(I found I don’t need as much of the FMT as is recommended, so I save some money by drawing it out a little longer).

And just FYI, none of the FMT is recommended by doctors. It’s my own experiment. But it works!