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Endometrial Cancer: Noticing my blessings every day
Gynecologic Cancers | Last Active: Dec 27, 2025 | Replies (126)Comment receiving replies
@heidivet I'm in exact same situation as you; diagnosed with Serous Endometrial Intraepithelial Carcinoma Stage 1a in June, with a few cells having invaded the musular lining. Surgery included a radical hystorectomy and removal of areas where the cancer was likely to have spread microscopically (like the omentum). One oncologist at MSK and another at UC Irvine said with a 20-30% chance of recurrence, just "wait and see" (no recommendation for chemo). However another doctor at UCLA said to do chemo so that recurrence is lessened by another 15%. I was thoroughly confused and went back and forth for months. Adding to the confusion were second and third opinions that kept changing my diagnosis; from precancer, to cancer only in the uterine lining, to a few cancer cells having gone beyond the uterine lining into muscular layer. I read as many posts as I could on sites such as this one and even discussed scenarios from the posts (thanks to people like alohman) with my oncologist. The UCLA doctor who recommended chemothetapy also gave me indepth studies to read and I reviewed them with the other oncologist who recommended wait and see. Through it all, with my brain totally exhausted, I ultimately decided to wait and see. My own logic was that no cancer was found anywhere else in my body, the areas where it was likely to exist microscopically were already removed, the extra 15% benefit did not guarantee non-recurrence nor outweigh the potential damage from the chemo itself, and it increased the chance of me becoming platinum resistent sooner if recurrences do happen later. I found many posts supporting both sides, so making this decision was really tough. I'll never know if it's best because if I do recurr, it could"ve recurred even with chemo. I just had to make a decision and stick to it. There's no clear right or wrong for people in our situation, unfortunayely.
Replies to "@heidivet I'm in exact same situation as you; diagnosed with Serous Endometrial Intraepithelial Carcinoma Stage 1a..."
@inquirer thanks for replying. There is a difference between our cancers. Mine is carcinosarcoma UCS vs yours which is serous. I just read a study from the NIH where they did a retrospective study and concluded that USC is more aggressive than serous. I hadn’t looked this up until now but your post prompted me to do so, so thanks for that and best wishes for continued success. Have you changed diet or lifestyle at all to improve your chances?
@inquirer My prayers for you as this whole thing is so stressful. I hope you have no recurrence nor any problems with the chemo you had. Your story is giving me courage to my my decision in February, so far numbers are good and no metastases but as we all now nothing is concrete so we must move on and stay positive. We are alive!! Thank you for sharing.
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@inquirer Hi it sounds like you have researched and gotten a number of opinions on what is best to do given your situation. I wish my omentum had been removed because that is where the cancer recurred, but that was never suggested. My surgeon did not feel that having chemo to lessen that chances of recurrence was in order and advised against it. If he had recommended having chemo I would have had it. In retrospect, I'm not sorry that I didn't have it since there was no guarantee that it would prevent a recurrence. It's toxic poison that is going into your body and I feel that I would only want that if it was necessary as it was when my cancer recurred. As I've mentioned, I was fortunate that my cancer was knocked out after 6 treatments and I tolerated the chemo well. My CA125 was 400 prior to treatment and went down to 80 after 1 treatment and was down to 15 after 6 treatments. I wish you the best, I know it is not easy dealing with all the information and trying to make the best decision for yourself. I really only had one surgeon and one oncologist both at MSK and I did not take time to get second opinions...I moved quickly because of the aggressive nature of this cancer, that's what scared me. Thankfully I feel well , healthy and strong even though I continue to be treated every 4 weeks with a targeted chemo. I'm told there is no end to the treatment/maintenance so fingers crossed that it will keep this MF at bay !! Hoping remission for us all forever !!!