← Return to Off Prednisone but still feeling new type of pain

Discussion
Comment receiving replies
Profile picture for Mike @dadcue

@tweetypie13

I'm jealous you started Kevzara relatively soon. I was on Prednisone for 12 years before a biologic was tried. A faster taper off prednisone was "suddenly" possible but it still took me approximately a year to taper off prednisone.

At one stage I was tapering at a rate of 1 mg per week until I reached 3 mg. At 3 mg of prednisone I was instructed to stay on 3 mg for 6 months while I waited for my cortisol level to improve.

PMR improved rapidly but it was my cortisol level that didn't suddenly improve. Even after I discontinued prednisone I had "moments of improvements" followed by not so good moments. My overall health improved and trended up but it waxed and waned for another 2-3 years after Prednisone was discontinued. After I was off Prednisone for 5 years it seemed like my health might be as good as it gets.

I started my biologic on January 1st, 2019 so the NEW YEAR has a special meaning to me. New Year Day of 2019 ushered in a dramatic improvement in my quality of life. Every year since then has shown steady improvements but I still have an occasional bump in the road on my PMR journey. I still get new types of pain that surface but PMR is still in remission. I have never had a complete relapse of PMR which was a characteristic when I took Prednisone.

Jump to this post


Replies to "@tweetypie13 I'm jealous you started Kevzara relatively soon. I was on Prednisone for 12 years before..."

@dadcue
What a journey…..we all seem to have a path. Thank goodness for this group and our exchange of information. It has been a savior for me. Wish I had looked for you all/a group sooner. Not something our Dr.s do.

I’m glad to hear you are on the “other side” at last. And hope it continues.
I also believe it is the exercise, minor or major that is a blessing for piece of mind.

I ask others of us to continue to contemplate when “over the speed bump/ on the improvement side”. That means a lot and I still learn.

Thank you