@heidivet Good morning...I was diagnosed with uterine serous carcinoma in April 2021. It was picked up on a routine pap smear ( very unusual)...no symptoms at all. I fast tracked everything because I was told from the beginning that it was a rare and aggressive form of cancer. I has a total hysterectomy and was told that it was caught very early and had not spread beyond the uterine wall. I asked about chemo and radiation and was told that chemo would not prevent recurrence in the future and that brachytherapy was recommended. I had three treatments with radiation, very easy with no side effects. 18 months later the cancer recurred in my omentum and I had 6 rounds of chemo with carboplatin and paclitaxol. I tolerated the chemo well with few side effects other than loss of my hair, which wasn't fun but I found a great wig and looked good. After the 6 rounds I was NED (no evidence of disease). my hair grew back and I continued with a 30 minute infusion of herceptin every three weeks...no side effects from the herceptin , but have echocardiograms every 12 weeks because the heart can be weakened by the drug. In August of 2024 my CA 125 began to trend upwards...and yes again the cancer is back in a very very early stage..only seen in 2 lymph nodes in my pelvic region seen on a PET scan...My doctor told me that I could put off treatment until things got worse ??? or start with a targeted chemo drug called enhertu...I chose to start treatment in May of 2025...I have had 11 treatments and again I am tolerating the drug well with few side effects.......the infusion is 30 minutes as opposed to the 4 hour treatment of carbo...and I have been able to increase the time between treatments from 3 weeks to every 4 weeks......My PET scans have been NED so thew drug is working...ohhh I should mention that my cancer is HER2 + which is why enhertu is the drug of choice. I feel great and hate that I have cancer even when the scans show no evidence of disease because I know it is always lurking somewhere. My hope is that enhertu will continue to keep cancer at bay and that if it stops working there will be other drug therapies that will work.
I have a very active lifestyle and that has continued during my cancer journey that is going on 5 years with 2 recurrences. I hope that you are luckier than I have been with recurrence. I think you need to have faith in your doctors and if you don't find another. I am being treated at MSK in NYC. and I believe that I am in good hands . Good luck to you and happy holidays !