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DiscussionAnyone take Anastrozole every other day?
Breast Cancer | Last Active: Jan 29 2:24pm | Replies (51)Comment receiving replies
Replies to "I'm surprised they're so adamant about not every other day. Considering that this one dose has..."
@saraabrooks
Anastrozole gave me crippled fingers on top of joint pains. My oncologist switched me to exemestane and it’s a whole lot better. I experience petechiea from the drug, so I decided to take a break once or twice a week. My oncologist probably wouldn’t approve that, but I found this research that reinforces my decision.
https://dailynews.ascopubs.org/do/reduced-dose-exemestane-noninferior-standard-daily-dose-postmenopausal-women-early-er
@saraabrooks I am so sorry, this is how I feel all the time as well. I take a different AI called Exemestane but sounds like the same side effects. I can't do even half of what I used to around the house and some days I can hardly get myself out of bed at all. When I do try and push through the exhaustion and pain, I end up with even more pain and even more exhaustion that doubles or triples later that day or the next. I recently tried retelling my oncologist just how badly I feel all the time but he brushed it off. I was told I just need to exercise more........ I still feel like punching him in the face when I think of this. I HAD been trying to continue all the same activity as I did before my diagnosis for 2 years and I just CANNOT! After my back surgery a year ago, I was forced to take it easy and I realized how much less pain I had by doing so. So that's what I am sticking with, I am the one who has to live in this body every day, not my doctor. I am not going to cause myself unneeded pain and end up with injuries and feeling even worse everyday by continually pushing myself. I don't feel like this is living either. I feel far worse than I did before my diagnosis but no one cares. Doctors don't want to hear that, they just write down on my file that I have no side effects and am continuing to tolerate treatment wonderfully. Meanwhile I have been telling them of many different side effects, since they all began years ago. Talk about feeling like you are screaming at the top of your lungs in a crowd and no one even turns to notice. We shouldn't have to live like this, they need to do better.
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@saraabrooks Because they give the same dose to everyone, unlike in chemotherapy, the problems people have been experiencing are bound to happen. In Europe, they do prescribe every other day dosages. They even have available a 5mg for Tamoxafen specially compounded. I bet if men were taking this stuff, they would find a way to redirect.