Neuropathy in feet and limited toe movement?

He is the one that started treatment for severe plantar fasciitis that has lasted 20 years and began trying to several meds for neuropathy. Actually he and family doctor collaborated. After many tests and several appointments with my first neurologist, he only gave me a diagnosis and agreed with the prescriptions I was taking. A second neurologist gave me the worst medical experience that I had ever had--he was only interested in surgery. With much research and consultations, it was clear, my current doctors were just as up to date on treatments as these specialists. I started with Gabapentin, which did almost nothing for my pain, then Cymbalta , which caused severe memory issues. We finally, tried Lyrica, which helped greatly with lesser side effects--slight dizziness. My podiatrist started me on Tramadol and eventually elevated the dosage to this point--slightly over normal dose. Pain doctor tried Nucynta, which worked very well for pain--but of course the numbness was much more bothersome and very expensive. I finally decided at that time that Lyrica/tramadol left me with a lot of pain and discomfort, but it was very manageable. The pain doctor had suggested implants--but my disease has developed quickly and spread to hands so I elected not to do that--From other disease and bad joints, I have had one major surgery per years for my entire retirement, so not interested to additional ones. At this point, I am accepting being down for the worst days and getting around as well as possible for the better ones. I still cannot walk far or fast, but am able to do light workouts and ride a stationary bike several times a week. I still have seen no reason to return to neurologist.

No burning but whenever I scratch my lower legs or feet I get electrical shock like feelings that shoots through my feet. Also very bad pain that randomly happens in my feet when I walk sometimes.

@prbiruk, I think you are referring to the RST SANEXAS. They have one of those miracle fix videos - https://www.youtube.com/watch which is a warning sign to me but it is just my opinion. I tried a tens unit that was very expensive and it did not help me at all. This seems to be another style of tens that will "repair" the nerves by electrical stimulation which is another warning sign for me.

I'm just not liking their too good to be true story but that's just me and my personal opinion. Good luck if you try it and I really hope it works for you. Hopefully some members who have tried it can share their experience.

@plbelanger, my experience with idiopathic SFPN and early stages of LFPN tells me that most neurologists are not terribly concerned
about the origin or cause of the neuropathy. Its been about 10 yrs for me and yes the pain and discomfort has gotten worse. I did well with Lyrica 150mg 2 x a day but even this dose had to be increased over the years. I also had surgery for spinal stenosis but it did not make the neuropathy pain and better but it did help the radicular pain i was having in my left leg. Perhaps for now focus on what works to make your neuropathy more tolerable. September will be here soon enough and most likely there will not be any further answers to a cause for your neuropathy. Best, David

Yes! Also, you may want to get on FB. That’s where there are so many groups and you will receive instant responses! Best wishes

I have brutal neuropathy from Amyloidosis and I am also waiting to see a Neurologist for this. I’ve been living with it for over 2 years. Gabapentin really doesn’t do much to alleviate the stabbing pains and the pins and needles. Considering Sonexas treatment. Has anyone tried this?

@johnbishop I use a massage gun on my feet when they hurt with the ball attachment it alleviates the pain enough to sleep for several hours I think the back and forth motion of the massage gun confuses the nerves or jumbles the pain receptors enough to give me relief hope this helps someone